Galactosemia Patient Registry

P O Box 1512 
Deerfield Beach, Fl 33443
Phone: 866-900-7421
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For general questions about the Galactosemia Patient Registry, please contact the Registry Administrator:


This research is being overseen by an Institutional Review Board (“IRB”).

An IRB is a group of people who perform independent review of research studies.

You may talk to them at (800) 562-4789,

Visit the National Organization for Rare Disorders home page at