Galactosemia Patient Registry
P O Box 1512
Deerfield Beach, Fl 33443
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For general questions about the Galactosemia Patient Registry, please contact the Registry Administrator: firstname.lastname@example.org
This research is being overseen by an Institutional Review Board (“IRB”).
An IRB is a group of people who perform independent review of research studies.
You may talk to them at (800) 562-4789, email@example.com:
Visit the National Organization for Rare Disorders home page at rarediseases.org.