Contact

Galactosemia Patient Registry

registry@galactosemia.org

P O Box 1512 
Deerfield Beach, Fl 33443
Phone: 866-900-7421
Follow us on Facebook https://www.facebook.com/Galactosemia.Foundation/

Follow us on Twitter @GalactosemiaFDN

For general questions about the Galactosemia Patient Registry, please contact the Registry Administrator: registry@galactosemia.org

 

This research is being overseen by an Institutional Review Board (“IRB”).

An IRB is a group of people who perform independent review of research studies.

You may talk to them at (800) 562-4789, info@neirb.com:

Visit the National Organization for Rare Disorders home page at rarediseases.org.